Lived experience of caregivers of family-centered care in the neonatal intensive care unit: “Evocation of being at home”

Jahanpour, Faezeh and Hadian Shirazi, Zahra and Sharif, Farkhondeh and Rakhshan, Mahnaz and Pishva, Narjes (2016) Lived experience of caregivers of family-centered care in the neonatal intensive care unit: “Evocation of being at home”. Iranian Journal of Pediatrics, 26 (5). p. 3960.

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Background: In recent decades, family-centered care (FCC) has come to be known, accepted, and reported as the best care strategy for admitted children and their families. However, in spite of the increasing application of this approach, the experiences of the caregivers have not yet been studied. Objectives: The present study aimed at the description and interpretation of the FCC experience in two neonatal intensive care units (NICU) at Shiraz University of Medical Sciences. Methods: This study was conducted through the hermeneutic phenomenological approach. Semi-structured interviews were conducted with 17 professional and familial caregivers, and their interactions were observed in three work shifts. The interviews were audiotaped and transcribed verbatim. After observations, field notes were also written. Finally, the data were analyzed through van Manen’s methodology. Results: One of the essential themes that emerged in this study was the “evocation of being at home” among familial and even professional caregivers. This theme had three subthemes: i.e., “meta-family interaction,” “comprehensive support,” and “reconstruction of a normal family.” Accordingly, FCC eliminated borders between professional and non-professional caregivers and built close relationships among them in the NICU. It also provided for the needs of neonates, their families, and even professional caregivers through perceived and received support. Conclusions: Parents of the neonates admitted to the NICU experience hard moments. They not only play the role of primary caregivers, but they also receive the care. Focusing on the different meanings of this care from the caregivers’ points of view and having managers provide certain requirements can guarantee the establishment of comprehensive care for clients and proper support for the staff in this unit.

Item Type: Article
Subjects: WP Gynecology
Divisions: Faculty of Nursing & Midwifery
Depositing User: زهرا صفایی
Date Deposited: 31 Dec 2018 08:20
Last Modified: 31 Dec 2018 08:20

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